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THE ALS OXFORD, OH TO BOXFORD, MA RIDE FOR HOPE
![](https://static.wixstatic.com/media/932259_3e6f62a2e2844d768cc4f808e8a591ee~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_3e6f62a2e2844d768cc4f808e8a591ee~mv2.webp)
![It's a Wrap!](https://static.wixstatic.com/media/932259_3e6f62a2e2844d768cc4f808e8a591ee~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_3e6f62a2e2844d768cc4f808e8a591ee~mv2.webp)
mciltopsfield
Jul 4, 20232 min read
It's a Wrap!
On average, a new case of ALS is diagnosed every 90 minutes. Just a few final words. I have felt so privileged to be a part of this...
124 views1 comment
![](https://static.wixstatic.com/media/932259_4b933f170778477fb8fd0d5163165c20~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_4b933f170778477fb8fd0d5163165c20~mv2.webp)
![Home Sweet Home!!!](https://static.wixstatic.com/media/932259_4b933f170778477fb8fd0d5163165c20~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_4b933f170778477fb8fd0d5163165c20~mv2.webp)
mciltopsfield
Jun 30, 20232 min read
Home Sweet Home!!!
5000 people in the United States are diagnosed with ALS each year. Thank you for following our journey. We made it home safe and sound...
140 views1 comment
![](https://static.wixstatic.com/media/932259_3de460dbb3be46648d2db22d1c74f5b6~mv2.jpeg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_3de460dbb3be46648d2db22d1c74f5b6~mv2.webp)
![On the home stretch!](https://static.wixstatic.com/media/932259_3de460dbb3be46648d2db22d1c74f5b6~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_3de460dbb3be46648d2db22d1c74f5b6~mv2.webp)
mciltopsfield
Jun 29, 20234 min read
On the home stretch!
An electromyography (EMG) is an important series of tests that, along with other clinical evidence, can be used to help diagnose ALS. An...
140 views1 comment
![](https://static.wixstatic.com/media/932259_b8c0d29dc6fc4bdc9e3eaa35bc011a66~mv2.jpeg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_b8c0d29dc6fc4bdc9e3eaa35bc011a66~mv2.webp)
![MASSACHUSETTS and Magical Moments!!!](https://static.wixstatic.com/media/932259_b8c0d29dc6fc4bdc9e3eaa35bc011a66~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_b8c0d29dc6fc4bdc9e3eaa35bc011a66~mv2.webp)
mciltopsfield
Jun 28, 20234 min read
MASSACHUSETTS and Magical Moments!!!
Each item of the ALSFRS-R is scored between 4 and 0. Higher scores represent greater functional ability. A maximum total score is 48 and...
136 views0 comments
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![Rain, rain go away and the power of our journey.](https://static.wixstatic.com/media/932259_7c60782254be49f0bae553927a625f89~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_7c60782254be49f0bae553927a625f89~mv2.webp)
mciltopsfield
Jun 27, 20233 min read
Rain, rain go away and the power of our journey.
The ALSFRS-R , is a tool that measures the loss of functional ability in people with ALS. The scale consists of 12 items: speech,...
135 views1 comment
![](https://static.wixstatic.com/media/932259_dd391c40b3f545fd89e1b3ba4db010ed~mv2.jpeg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_dd391c40b3f545fd89e1b3ba4db010ed~mv2.webp)
![Bad news; good news edition](https://static.wixstatic.com/media/932259_dd391c40b3f545fd89e1b3ba4db010ed~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_dd391c40b3f545fd89e1b3ba4db010ed~mv2.webp)
mciltopsfield
Jun 26, 20234 min read
Bad news; good news edition
Managing ALS takes a multidisciplinary approach, which allows people with ALS to receive care from professionals with different areas of...
125 views1 comment
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![Play Ball! A Visit to Cooperstown](https://static.wixstatic.com/media/932259_a6c93accf05d4392bcf6483d48eaf094~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_a6c93accf05d4392bcf6483d48eaf094~mv2.webp)
mciltopsfield
Jun 25, 20233 min read
Play Ball! A Visit to Cooperstown
There is currently no cure for ALS. However, there are many medications that are used to help relieve symptoms, such as muscle cramps and...
101 views0 comments
![](https://static.wixstatic.com/media/932259_88d482268a0c4787ab00fc61a644d403~mv2.jpeg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_88d482268a0c4787ab00fc61a644d403~mv2.webp)
![Trying to Outride the Rain; we didn't...](https://static.wixstatic.com/media/932259_88d482268a0c4787ab00fc61a644d403~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_88d482268a0c4787ab00fc61a644d403~mv2.webp)
mciltopsfield
Jun 24, 20233 min read
Trying to Outride the Rain; we didn't...
Lower body symptoms of ALS (Lumbar) • Frequent tripping • Difficulty on stairs • Weak feet Today started out with much internal debate...
132 views1 comment
![](https://i.ytimg.com/vi/vQE2sNfYXpg/hqdefault.jpg)
![68 Miles on the Erie Canal](https://i.ytimg.com/vi/vQE2sNfYXpg/hqdefault.jpg)
mciltopsfield
Jun 23, 20232 min read
68 Miles on the Erie Canal
Upper body symptoms of ALS (Cervical) • Hand weakness • Limited range of motion • Upper body muscle spasms • Trouble with...
116 views1 comment
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![We're in a New York state of mind...](https://static.wixstatic.com/media/932259_4533c06f645b4b57bab2759eb47e3db4~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_4533c06f645b4b57bab2759eb47e3db4~mv2.webp)
mciltopsfield
Jun 22, 20233 min read
We're in a New York state of mind...
Symptoms vary from person to person and can appear in different regions of the body. Head and neck symptoms indicates Bulbar onset and is...
116 views1 comment
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![Groundhog Day!!!](https://static.wixstatic.com/media/932259_1a2f44f505c0484fb33ca43ee9f79f1b~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_1a2f44f505c0484fb33ca43ee9f79f1b~mv2.webp)
mciltopsfield
Jun 21, 20233 min read
Groundhog Day!!!
40-60 years of age is the most common age group to be diagnosed with ALS This morning we got up and did it all over again! Kind of like...
122 views0 comments
![](https://i.ytimg.com/vi/ktHctrubPnk/maxresdefault.jpg)
![Goodbye Ohio - hello PA!](https://i.ytimg.com/vi/ktHctrubPnk/maxresdefault.jpg)
mciltopsfield
Jun 20, 20232 min read
Goodbye Ohio - hello PA!
90 - 95% of diagnosed ALS cases are not hereditary. Last night I had a moment where the reality of Doug's ALS diagnosis hit me and I...
144 views0 comments
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![Camaraderie, Team Building and Connections](https://static.wixstatic.com/media/932259_d47ffae6e59c4ee8b482019a7ec1cd26~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_d47ffae6e59c4ee8b482019a7ec1cd26~mv2.webp)
mciltopsfield
Jun 19, 20232 min read
Camaraderie, Team Building and Connections
Currently, there is no cure for ALS and no effective treatment to halt or reverse the progression of the disease. However, there are...
100 views0 comments
![](https://static.wixstatic.com/media/932259_bb9e9c6c78c7410d8723d01c16bb89bd~mv2.jpeg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_bb9e9c6c78c7410d8723d01c16bb89bd~mv2.webp)
![Gratitude, Hope, Acceptance... Peace](https://static.wixstatic.com/media/932259_bb9e9c6c78c7410d8723d01c16bb89bd~mv2.jpeg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_bb9e9c6c78c7410d8723d01c16bb89bd~mv2.webp)
mciltopsfield
Jun 18, 20232 min read
Gratitude, Hope, Acceptance... Peace
Lifespan after an ALS diagnosis typically is 2 to 5 years. My morning started with a lovely yoga/stretching session on the McGregor porch...
107 views0 comments
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![A day to reflect on friendship](https://static.wixstatic.com/media/932259_b60dd9e62e9b4a10b3433c521a5a78fb~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_b60dd9e62e9b4a10b3433c521a5a78fb~mv2.webp)
mciltopsfield
Jun 17, 20233 min read
A day to reflect on friendship
' In many cases, ALS does not affect a person’s thinking ability. However, as many as 50% of people with ALS develop some degree of...
189 views0 comments
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![Ohio and Erie Trail](https://static.wixstatic.com/media/932259_acef63b55afd4f4197dbbcba983d6ae5~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_acef63b55afd4f4197dbbcba983d6ae5~mv2.webp)
mciltopsfield
Jun 16, 20232 min read
Ohio and Erie Trail
The involuntary muscles, such as those that control the heartbeat, gastrointestinal tract and bowel, and bladder are not directly...
131 views0 comments
![](https://static.wixstatic.com/media/932259_15dbeff28cd04c7e914c5b460290ed05~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_15dbeff28cd04c7e914c5b460290ed05~mv2.webp)
![Magical Morning with Less than a Fairytale Ending](https://static.wixstatic.com/media/932259_15dbeff28cd04c7e914c5b460290ed05~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_15dbeff28cd04c7e914c5b460290ed05~mv2.webp)
mciltopsfield
Jun 15, 20233 min read
Magical Morning with Less than a Fairytale Ending
With ALS each person’s disease course is unique, but eventually most individuals with ALS will not be able to stand or walk, get in or...
125 views0 comments
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![Day 1 is in the books!](https://static.wixstatic.com/media/932259_604a00a1faeb49fe94c24fa152f7bd5f~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_604a00a1faeb49fe94c24fa152f7bd5f~mv2.webp)
mciltopsfield
Jun 14, 20233 min read
Day 1 is in the books!
Onset of ALS symptoms usually occurs in late middle age or later, although it also can occur in young adults, as well as in the elderly....
147 views0 comments
![](https://static.wixstatic.com/media/932259_dcf617ad110d4a6f959a3d17021558bb~mv2.jpg/v1/fill/w_250,h_250,fp_0.50_0.50,q_30,blur_30,enc_auto/932259_dcf617ad110d4a6f959a3d17021558bb~mv2.webp)
![Tomorrow we ride!](https://static.wixstatic.com/media/932259_dcf617ad110d4a6f959a3d17021558bb~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_dcf617ad110d4a6f959a3d17021558bb~mv2.webp)
mciltopsfield
Jun 13, 20232 min read
Tomorrow we ride!
ALS affects many parts of the body, most notably the skeletal and respiratory (breathing) muscles. Doug and I started our day with Danny...
65 views0 comments
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![Oxford or Bust!!!](https://static.wixstatic.com/media/932259_9384b58d91a84a258b9a0a50922fd666~mv2.jpg/v1/fill/w_454,h_341,fp_0.50_0.50,q_90,enc_auto/932259_9384b58d91a84a258b9a0a50922fd666~mv2.webp)
mciltopsfield
Jun 12, 20232 min read
Oxford or Bust!!!
The causes of the vast majority of ALS cases are still unknown. We had planned to get an early start this morning to drive 10 hours to...
38 views0 comments
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