top of page
THE ALS OXFORD, OH TO BOXFORD, MA RIDE FOR HOPE


It's a Wrap!
On average, a new case of ALS is diagnosed every 90 minutes. Just a few final words. I have felt so privileged to be a part of this...
mciltopsfield
Jul 4, 20232 min read
Â
Â
Â


Home Sweet Home!!!
5000 people in the United States are diagnosed with ALS each year. Thank you for following our journey. We made it home safe and sound...
mciltopsfield
Jun 30, 20232 min read
Â
Â
Â


On the home stretch!
An electromyography (EMG) is an important series of tests that, along with other clinical evidence, can be used to help diagnose ALS. An...
mciltopsfield
Jun 29, 20234 min read
Â
Â
Â


MASSACHUSETTS and Magical Moments!!!
Each item of the ALSFRS-R is scored between 4 and 0. Higher scores represent greater functional ability. A maximum total score is 48 and...
mciltopsfield
Jun 28, 20234 min read
Â
Â
Â


Rain, rain go away and the power of our journey.
The ALSFRS-R , is a tool that measures the loss of functional ability in people with ALS. The scale consists of 12 items: speech,...
mciltopsfield
Jun 27, 20233 min read
Â
Â
Â


Bad news; good news edition
Managing ALS takes a multidisciplinary approach, which allows people with ALS to receive care from professionals with different areas of...
mciltopsfield
Jun 26, 20234 min read
Â
Â
Â


Play Ball! A Visit to Cooperstown
There is currently no cure for ALS. However, there are many medications that are used to help relieve symptoms, such as muscle cramps and...
mciltopsfield
Jun 25, 20233 min read
Â
Â
Â


Trying to Outride the Rain; we didn't...
Lower body symptoms of ALS (Lumbar) • Frequent tripping • Difficulty on stairs • Weak feet Today started out with much internal debate...
mciltopsfield
Jun 24, 20233 min read
Â
Â
Â


68 Miles on the Erie Canal
Upper body symptoms of ALS (Cervical) • Hand weakness • Limited range of motion • Upper body muscle spasms • Trouble with...
mciltopsfield
Jun 23, 20232 min read
Â
Â
Â


We're in a New York state of mind...
Symptoms vary from person to person and can appear in different regions of the body. Head and neck symptoms indicates Bulbar onset and is...
mciltopsfield
Jun 22, 20233 min read
Â
Â
Â


Groundhog Day!!!
40-60 years of age is the most common age group to be diagnosed with ALS This morning we got up and did it all over again! Kind of like...
mciltopsfield
Jun 21, 20233 min read
Â
Â
Â


Goodbye Ohio - hello PA!
90 - 95% of diagnosed ALS cases are not hereditary. Last night I had a moment where the reality of Doug's ALS diagnosis hit me and I...
mciltopsfield
Jun 20, 20232 min read
Â
Â
Â


Camaraderie, Team Building and Connections
Currently, there is no cure for ALS and no effective treatment to halt or reverse the progression of the disease. However, there are...
mciltopsfield
Jun 19, 20232 min read
Â
Â
Â


Gratitude, Hope, Acceptance... Peace
Lifespan after an ALS diagnosis typically is 2 to 5 years. My morning started with a lovely yoga/stretching session on the McGregor porch...
mciltopsfield
Jun 18, 20232 min read
Â
Â
Â


A day to reflect on friendship
' In many cases, ALS does not affect a person’s thinking ability. However, as many as 50% of people with ALS develop some degree of...
mciltopsfield
Jun 17, 20233 min read
Â
Â
Â


Ohio and Erie Trail
The involuntary muscles, such as those that control the heartbeat, gastrointestinal tract and bowel, and bladder are not directly...
mciltopsfield
Jun 16, 20232 min read
Â
Â
Â


Magical Morning with Less than a Fairytale Ending
With ALS each person’s disease course is unique, but eventually most individuals with ALS will not be able to stand or walk, get in or...
mciltopsfield
Jun 15, 20233 min read
Â
Â
Â


Day 1 is in the books!
Onset of ALS symptoms usually occurs in late middle age or later, although it also can occur in young adults, as well as in the elderly....
mciltopsfield
Jun 14, 20233 min read
Â
Â
Â


Tomorrow we ride!
ALS affects many parts of the body, most notably the skeletal and respiratory (breathing) muscles. Doug and I started our day with Danny...
mciltopsfield
Jun 13, 20232 min read
Â
Â
Â


Oxford or Bust!!!
The causes of the vast majority of ALS cases are still unknown. We had planned to get an early start this morning to drive 10 hours to...
mciltopsfield
Jun 12, 20232 min read
Â
Â
Â
bottom of page